Wilkie Wages War: January 2008
Wilkie Wages War: January 2008
Environmental Health Network leader Barbara Wilkie discovered in July 2005 that her chemical injury/multiple chemical sensitivities had suddenly manifested as stage 4 (later stage 5) kidney disease (kidney failure). Despite dire warnings of death within a year, she eschewed dialysis and Western Medicine drugs and took a route of alternative medicine, Traditional Chinese Medicine, and strict dietary changes. She lived well for six years, far beyond the doctors’ predictions. Barb died at home, surrounded by friends and family, on May 31, 2011.
During this time, Barb documented her journey. From diagnosis through June 2008, she created one huge website page packed with details, plus some side documents on diet and other topics. We have divided these works into smaller pieces, by date or topic, to make it easier to read and find things. For dates after June 2008, we have letters, online posts, and other documents.
Barb intended her work to be read and used. We hope this presentation will help you do just that.
Wilkie Wages War on Kidney Disease
(aka Renal Disease or Failure)
OR, AS I SEE IT: Life with yet another facet of living with MCS.
I want to live life while dying.
|High or Low||Blood checked for||Reading is:||What should be:|
|H||BUN||66 . . . Down 13 points since last month! (BUN increases as kidney function decreases.) Again, I have no built in excuse, except of course, worsening kidney disease. BUN also reflects one’s state of hydration.||10 – 20 mg/dL|
|Magnesium||2.0 . . . Down .2 pt. Normal. Me! Two months in a row for this reading. As I understand it, too much magnesium can adversely affect heart, just as can too much potassium.||1.7 -2.3 mg/dL|
|L||Calcium||7.9 . . . Down .5 point from last month and now even further below normal. Better start taking the calcium capsules! That also helps keep phosphorous under control.||8.5 – 10.3 mg/dL|
|CO2||Ignored this month..||24 – 33 mEq/L|
|H||Creatinine||6.36 . . . Down .53 of a point from last test.||<1.2 mg/dL|
|H||Phosphorus||4.8 . . . Down 1.2 points so this is better although still too high. Too much phosphorus in the blood and bones can be leached of calcium, causing them to become brittle.||2.7 – 4.5 mg/dL|
|Potassium||5.1 . . . Up .5 but still in “normal” range without half trying! Yeah!!!||3.5 – 5.3 mEq/L|
|Sodium||131 . . . Down 6 points and again, too low. Dag nab it.||133 – 145 mEq/L|
|L||GFR||7 or 8 . . . Up one point for white woman, but A-A remains the same. The larger number is assigned to African-American women, as they are seen as having more muscle mass than caucasians. You can see how “painting with a broad brush” can cause errors. White women aren’t supposed to have muscle mass? Ridiculous! My ethnic origins were quite muscular, as am I.||>60 mL/min|
|L||Hemoglobin||7.6 . . . Up .3 point. Hemoglobin is supposed to fill the red blood cell and the amount in your red blood cells is an indication of how well your blood can carry oxygen.||11.5 – 15 g/dL|
|L||Hematocrit||23.3 . . . Up 1 point. Hematocrit measures the amount of space taken up by your red blood cells. By both counts, hemoglobin and hematocrit, I’ve got the typical severe anemia that comes with kidney disease. And, I’ve had it for some time now. However, I don’t suffer the fatigue or any other such symptoms of severe anemia.||34 – 46 %|
|L||WBC||2.4. . . . Dropped 1.4 points and now below normal range.||3.5 – 12.5|
|L||Red Blood Cell Count||2.48 . . . Up 12 points. Red blood cells are running too low in this test too.||3.60 – 5.19|
|RDW, RBC||12.8 . . . Down .2 pt.||11.9 – 14.3%|
|MCV||94 fl. . . . Down 1 point, but still in range! “Mean corpuscular volume (MCV) is a measurement of the average size of your RBCs. The MCV is elevated when your RBCs are larger than normal (macrocytic), for example in anemia caused by vitamin B12 deficiency. When the MCV is decreased, your RBCs are smaller than normal (microcytic), such as is seen in iron deficiency anemia or thalassemias.” http://www.labtestsonline.org/understanding/analytes/cbc/test.html||80 – 100|
|Platelet Count||230 K/uL . . . Dropped 20 points. “Platelet Count measures the number of platelets, which are involved in blood clotting.” http://www.labtestsonline.org/understanding/analytes/cbc/test.html||140 – 4|