Wilkie Wages War: August 2006
Wilkie Wages War: August 2006
Environmental Health Network leader Barbara Wilkie discovered in July 2005 that her chemical injury/multiple chemical sensitivities had suddenly manifested as stage 4 (later stage 5) kidney disease (kidney failure). Despite dire warnings of death within a year, she eschewed dialysis and Western Medicine drugs and took a route of alternative medicine, Traditional Chinese Medicine, and strict dietary changes. She lived well for six years, far beyond the doctors’ predictions. Barb died at home, surrounded by friends and family, on May 31, 2011.
During this time, Barb documented her journey. From diagnosis through June 2008, she created one huge website page packed with details, plus some side documents on diet and other topics. We have divided these works into smaller pieces, by date or topic, to make it easier to read and find things. For dates after June 2008, we have letters, online posts, and other documents.
Barb intended her work to be read and used. We hope this presentation will help you do just that.
Wilkie Wages War on Kidney Disease
(aka Renal Disease or Failure)
OR, AS I SEE IT: Life with yet another facet of living with MCS.
I want to live life while dying.
August 2006 . . .
| High or Low | Blood checked for | Reading is: | What should be: |
| H | BUN | 55 . . . a bigger leap upward . . . not good news. This is my highest BUN reading. (blood, urea, nitrogen – from the breakdown of protein. BUN increases as kidney function decreases.) | < 21 |
| Magnesium | 2.1 . . . Normal range, hot diggity. This is important because, as I understand it, too much magnesium can affect heart just as can too much potassium. | 1.7 -2.3 | |
| Calcium | 9.1 | 8.5 – 10.3 | |
| CO2 | Whoops, no request this month for CO2 | 24 – 33 | |
| H | Creatinine | 4.9 . . . up by a tenth of a point again, but at least not my highest high, and I can feel that I’ve pretty much held my ground. | <1.2 |
| Phosphorus | 4.2 . . . Wow, normal! This is important, because, as I understand it, too much phosphorus and you start leaching calcium out of bones. | 2.7 – 4.5 | |
| Potassium | 4.6 . . . Steady as she blows. | 3.5 – 5.3 | |
| L | GFR * | 9 or 11 . . . still have muscle mass so I’ll take the 11! Of course, this is based only on the creatinine reading, so IF for any reason that’s off, so then is the GFR. | >59 |
| L | Hemoglobin | 9.2 . . . another drop, but only a tenth of a point. Maybe miracles are starting with a turn around right here. | 11.5 – 15 |
| L | Hematocrit | 28 . . . UP a tenth of a point. At least that’s a different direction. Miracles, anyone? I’m up for them, starting N O W ! | 34 – 46 |
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