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Home » Wilkie Wages War

Wilkie Wages War: April 4, 2006

3 August 2011 2,197 views No Comment

Wilkie Wages War: April 4, 2006

 


Environmental Health Network leader Barbara Wilkie discovered in July 2005 that her chemical injury/multiple chemical sensitivities had suddenly manifested as stage 4 (later stage 5) kidney disease (kidney failure). Despite dire warnings of death within a year, she eschewed dialysis and Western Medicine drugs and took a route of alternative medicine, Traditional Chinese Medicine, and strict dietary changes. She lived well for six years, far beyond the doctors’ predictions.  Barb died at home, surrounded by friends and family, on May 31, 2011.

During this time, Barb documented her journey. From diagnosis through June 2008, she created one huge website page packed with details, plus some side documents on diet and other topics.  We have divided these works into smaller pieces, by date or topic, to make it easier to read and find things.  For dates after June 2008, we have letters, online posts, and other documents.

Barb intended her work to be read and used. We hope this presentation will help you do just that.


Wilkie Wages War on Kidney Disease
(aka Renal Disease or Failure)

OR, AS I SEE IT: Life with yet another facet of living with MCS.
I want to live life while dying.

April 4, 2006

High or Low Blood checked for Reading is: What should be:
H BUN 42 . . . HIGHEST ever, but I had fish the day before the test < 21
H Magnesium 2.8 1.7 -2.3
Calcium 8.7 8.5 – 10.3
L CO2 20 24 – 33
H Creatinine 3.5 . . . down a little, but warned that variations happen in the readings <1.2
H Phosphorus 5.6 . . . but I had fish the day before the test 2.7 – 4.5
Potassium 4.5 . . . back to “normal” despite a few potatoes 3.5 – 5.3
L GFR * 14 . . .up a little, reflective of the creatinine dropping a bit. Taking my 67 years and my creatinine reading, if we look at AfAm, based on my muscles, not race, I’d have a GFR of 17; if white male, it would read 19, and black male would be 23. Am I really a white woman? Yeah, but probably more muscular and more active than what the experts factor in as average. >59
L Hemoglobin 10.1 . . . a bit of a drop from March, but same as January 11.5 – 15
L Hematocrit 30.3 . . . lowest ever . . . it had been dropping but raised a bit in March only to drop again in April 34 – 4

 

The April 4th tests were taken right after a weekend of family in town. My cousin and her hubby —
haven’t seen her in 50 years, and had never had the pleasure of meeting him — and also our son.
While their obligations took them to places apart from one another, my hubby and I
were able to eat with each of them, often. I did more “normal” eating than I should have done,
and I believe paid the price in worsening numbers like phosphorous and magnesium. Can’t
explain the drop in the hematocrit. Glad that the potassium fell back into normal range. I remain
hopeful that somewhere in my treatment, sans pharmaceuticals, that we’ll find a way to slow
this down, and IF there are miracles, even turn it around. But nephrologists say that cannot happen.

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